Brave Lincon winning battle with rare condition

Reporter: Alex Carey
Date published: 25 February 2016


BRAVE Lincon Freeman has defied the odds after being told he would never walk or talk.

When the resilient five-year-old was born, doctors found a port wine birthmark on his face extended into his brain. After four months the condition — Sturge-Weber syndrome — caused Lincon to suffer up to 80 seizures a day.

He spent the first year of his life at London’s Great Ormond Street Hospital and at 13 months doctors removed half his brain in an eight-hour operation. They told Lincon’s joint mothers — partners Kim Ratcliffe and Donna Freeman — their son would never walk or talk - but the tough youngster clearly wasn’t listening

Now he does both.

Kim said: “He is so determined and an inspiration to us. He makes us feel very humble and we are incredibly proud of him.”

The Kingfisher Community School pupil suffers after effects from the surgery and condition. He has the mental age of a two and a half year old, impaired vision due to glaucoma, no use of his left arm and he needs a leg splint to walk. He also suffers occasional seizures.

A charity fun day is being held at Saddleworth Stars nursery, Scouthead on May 29 to raise money and awareness for the Sturge-Weber UK charity